(Source – National Institutes of Health)
The Muscular Dystrophy Coordinating Committee (MDCC), a congressionally authorized group of representatives from federal agencies and patient advocates, recently released an updated version of its Action Plan for the Muscular Dystrophies. The plan is a comprehensive guide for addressing critical challenges facing people living with muscular dystrophy. An editorial, published in Muscle & Nerve, provides an overview of the plan, as well as recommendations for its use.
“Funding organizations and other resource providers, scientists, patients and advocates can all use this plan in their own ways to guide research, collaborations and strategies to extend and improve the quality of life of people suffering from these disorders,” said Stephen I. Katz, M.D., Ph.D., chair of the MDCC, director of the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health, and senior author on the editorial. Read more…
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