{"id":10347,"date":"2018-05-08T08:25:58","date_gmt":"2018-05-08T12:25:58","guid":{"rendered":"https:\/\/medicarereport.org\/?p=10347"},"modified":"2018-05-08T08:25:58","modified_gmt":"2018-05-08T12:25:58","slug":"the-amish-pool-resources-for-their-medical-care-a-budget-busting-gene-therapy-puts-them-in-a-bind","status":"publish","type":"post","link":"https:\/\/medicarereport.org\/?p=10347","title":{"rendered":"The Amish pool resources for their medical care. A budget-busting gene therapy puts them in a bind"},"content":{"rendered":"<p>(By Eric Boodman for ST<em>A<\/em>T)<\/p>\n<p>The meeting could determine whether the two young siblings would keep going\u00a0blind. The doctor knew that going in, but he was feeling good. He\u2019d negotiated huge discounts before, allowing patients to get complex surgeries or budget-busting drugs they otherwise couldn\u2019t afford. And his last two conversations with Spark Therapeutics had been promising. <a href=\"https:\/\/www.statnews.com\/2018\/05\/08\/luxturna-gene-therapy-price-amish\/?_hsenc=p2ANqtz-9O8nNrVJ3ux7v4FXXFlY7iAMvkuhnI_6sQ04SXpy50i0Ul-RNyVNne0XFVS8eeJ-sE3OEXF-9Z8nLZ2Hv07eZ0rh9NZw&amp;_hsmi=62745353\">Continue reading article here&#8230;<\/a><\/p>\n<p><a href=\"https:\/\/medicarereport.org\/wp-content\/uploads\/2016\/09\/STAT-Logo.png\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-4372\" src=\"https:\/\/medicarereport.org\/wp-content\/uploads\/2016\/09\/STAT-Logo-300x32.png\" alt=\"\" width=\"300\" height=\"32\" srcset=\"https:\/\/medicarereport.org\/wp-content\/uploads\/2016\/09\/STAT-Logo-300x32.png 300w, https:\/\/medicarereport.org\/wp-content\/uploads\/2016\/09\/STAT-Logo.png 453w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<pre>Notice: The link provided above connects readers to the full content of the posted article. The URL (internet address) for this link is valid on the posted date; medicarereport.org cannot guarantee the duration of the link\u2019s validity. Also, the opinions expressed in these postings are the viewpoints of the original source and are not explicitly endorsed by AMAC, Inc.; the AMAC Foundation, Inc.; or medicarereport.org.<\/pre>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>(By Eric Boodman for STAT) The meeting could determine whether the two young siblings would keep going\u00a0blind. The doctor knew<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[17,15],"tags":[],"class_list":["post-10347","post","type-post","status-publish","format-standard","hentry","category-emerging-health-issues","category-part-dprescription-drugs"],"_links":{"self":[{"href":"https:\/\/medicarereport.org\/index.php?rest_route=\/wp\/v2\/posts\/10347","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/medicarereport.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/medicarereport.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/medicarereport.org\/index.php?rest_route=\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/medicarereport.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=10347"}],"version-history":[{"count":1,"href":"https:\/\/medicarereport.org\/index.php?rest_route=\/wp\/v2\/posts\/10347\/revisions"}],"predecessor-version":[{"id":10348,"href":"https:\/\/medicarereport.org\/index.php?rest_route=\/wp\/v2\/posts\/10347\/revisions\/10348"}],"wp:attachment":[{"href":"https:\/\/medicarereport.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=10347"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/medicarereport.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=10347"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/medicarereport.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=10347"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}