The Amish pool resources for their medical care. A budget-busting gene therapy puts them in a bind

(By Eric Boodman for STAT)

The meeting could determine whether the two young siblings would keep going blind. The doctor knew that going in, but he was feeling good. He’d negotiated huge discounts before, allowing patients to get complex surgeries or budget-busting drugs they otherwise couldn’t afford. And his last two conversations with Spark Therapeutics had been promising. Continue reading article here…

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