This toddler with a rare disease got a life-changing treatment. Why can’t all kids?

(By David J. Bailey for STAT)

When 6-month-old Asher Camp was diagnosed with type 1 spinal muscular atrophy, a leading genetic cause of infant mortality, his family measured his life in days, not years. They dreaded the future, wondering how much time they would have with their beautiful baby boy. Continue reading article here…

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