Medicare policy on supplemental oxygen has forced some patients to retreat from life

My sister called me in tears after her first supplemental oxygen delivery. It was July 2013.

At the time, she was a 41-year-old mother to a 4-year-old and a 1-year-old, and worked part-time as an occupational nurse practitioner at the University of Maryland. We have a rare lung disease called primary ciliary dyskinesia (PCD), and because of the resulting lung damage, called bronchiectasis, we were both prescribed supplemental oxygen. My sister needed it 24/7 and I only needed it for exercise. Here…

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